September 24, 2017

Bright Grandview Golf Course

Des Moines, Iowa

We would like to say a special thank you to all of our golfers, sponsors, and volunteers for their support!

Research

The Jamie Berkley Imaging Facility at Dr. Segal's lab,  houses the Jamie Kathleen Berkley microscope that was purchased with the profits raised from the in inagural tournament.  

jamieberkleylegacy.com


.

awareness

Angelman Syndrome is a rare genetic disorder , many people with A.S. Have cognitive delays , are non verbal , and suffer from debilitating seizures .

Education

Help to inform and educate while enjoying the camaraderie of the  game of golf with friends and family

The Jamie Berkley Memorial Open is held each year to build a lasting legacy , to remember , and to honor the memory of our daughter Jamie. We have built the tournament on three building blocks:  Awareness,  Research and Education. Jamie lived a life full of love, laughter and making a huge impact on everyone she met.  Angelman Syndrome is a rare neurological disorder , many people with Angelman syndrome are non verbal ,but communicate in their own way. Many also suffer from debilitating seizures, as Jamie did. .We feel a significant responsibility to every person with Angelman Syndrome, to aid in the funding for a cure.


We chose FAST (Foundation for Angelman Syndrome Therapeutics ) to be the beneficiary of all profits raised at the event.   FAST has issued the profits raised each year as The Jamie K. Berkley Grant in Aid to Dr. David Segal at the U.C. Davis Genome Center. Upon hearing Jamie's story, Dr. Segal and U.C. Davis , dedicated the Jamie Berkley Imaging Facility in her memory. The four year total raised and donated in Jamie's name to FAST is $35,000.00!